Journal article

Publication year: 2010

Pages: 230-251

Journal: Computer Methods and Programs in Biomedicine

Volume number: 99

Issue number: 3

ISSN: 0169-2607

eISSN: 1872-7565

DOI Link: https://doi.org/10.1016/j.cmpb.2009.12.001

Publisher: Elsevier

Abstract: 

Secondary use of health data has a vital role in improving and advancing medical knowledge. While digital health records offer scope for facilitating the flow of data to secondary uses, it remains essential that steps are taken to respect wishes of the patient regarding secondary usage, and to ensure the privacy of the patient during secondary use scenarios. Consent, together with depersonalisation and its related concepts of anonymisation, pseudonymisation, and data minimisation are key methods used to provide this protection. This paper gives an overview of technical, practical, legal, and ethical aspects of secondary data use and discusses their implementation in the multi-institutional @neurIST research project.

Harvard Citation style: Elger, B., Iavindrasana, J., Lo Iacono, L., Müller, H., Roduit, N., Summers, P., et al. (2010) Strategies for health data exchange for secondary, cross-institutional clinical research, Computer Methods and Programs in Biomedicine, 99(3), pp. 230-251. https://doi.org/10.1016/j.cmpb.2009.12.001

APA Citation style: Elger, B., Iavindrasana, J., Lo Iacono, L., Müller, H., Roduit, N., Summers, P., & Wright, J. (2010). Strategies for health data exchange for secondary, cross-institutional clinical research. Computer Methods and Programs in Biomedicine. 99(3), 230-251. https://doi.org/10.1016/j.cmpb.2009.12.001